Anila Kitteon

Anila Kitteon
Sniff the Daffs
Showing posts with label breast cancer. Show all posts
Showing posts with label breast cancer. Show all posts

Friday, 19 November 2021

The Other End of 2021

 Hey Friends,

It's November! I just checked and my last post was in January.
Funny to think I didn't have a clue what might occur.

I was working as a Lifeguard at the new Rec Centre, that much is true.
I remembered the things I hadn't been keen on last time I did that job, 20+yrs ago!

We were advised the Fitness Centre (gym) needed 'Assistant Floor Staff', so I and a couple of other lifeguards volunteered.

I soon remembered what I loved about fitness; the supervisor of the fitness centre is European and could envision me teaching classes again etc. It was so uplifting!

When we closed again in March, I used the time to study for my Personal Trainer Specialist certification and started training a couple of friends for practice. When we returned to the Rec Centre in July, I was on personal trainer rate instead of AFF. I have covered a HIIT class when someone was unwell, which was fun! I have also taught 2 of 4 of my practice classes for my current course and am already being lined up for future classes.

Sadly, my lovely, supportive German supervisor isn't staying (we are having to be vaccinated against Covid and it isn't in her beliefs), but I intend to keep her as my mentor. Her replacement, Thomas, is someone I have enjoyed working evenings with and will do a most excellent job.

I also started a 6 months Fitness & Nutrition Expert Certification(s) course.
My deadline is January, but I would love to have it done by Christmas!

At the same time as starting the course, I started the Fit Chicks Transformation Challenge!
28 days - although we went away on the 26th day so wasn't as rigid, but didn't have treats until the challenge was officially over!  This has helped me find a routine and better understanding of working out. Also learning and working with experienced PTs is the best thing ever!!  I am feeling good and getting stronger!

We had a fantastic holiday road trip up to Wawa and back to Manitoulin Island, our magical happy place! 


Floor Staff

  

In other news, we acquired a kitty - one I had spotted in someone's back garden; I knocked on the front door and the man handed me a wee Pud'n. So that's her name.

Midnight was living in the scrapyard of our upstairs neighbour a month or so after Pud'n arrived. He is still quite skittish but soooo affectionate! He had parasites from eating the crap from the garbage.

All three cats have had a fair share of meds recently! Pud'n had her kitty hysterectomy on Monday. They have become such fantastic friends!
Poor Puss is just grumbled by their presence!

  


 



It has been 3yrs since I had chemotherapy!
My hair is doing well; nice and curly with bouce.
The chemo curl ringlets are slowly getting the snip!





Pud'n 


Jumping for Joy!



OK, my course is awaiting me. I will try to write again before 2022 is upon us!

But no promises! TTFN 

PS We also got a new car in May :) and my lil whip went to someone who loves her!

Thursday, 14 March 2019

Chemo Poem



8th December 2018
Chemo week 10 of 16
My hair was long & luscious;
a wavy, fuzz mess.
But since 2 months it's gone now
I've been left with much much less.

Being bald isn't so bad;
Quick showers: wash & go!
I try to run my fingers through it,
Alas I just touch bone!

This poison is to kill me
It's a funny kind of life...
We're on a journey to kill the cancer,
So I can keep being a wife.

I go from day to day
Feeding myself with goodness;
I know life will never be the same,
But it could be so much worse.

And so I'll skip & sing my way
through chemo and the lot.
Rads, hormone treatment, life goes on

I'll be giving it all I've got!




I just realised that I hadn't shared this!
Today I walked to the hospital and back (which I've been talking about doing since this journey began, 8 months ago!) and saw my favourite chemo nurses for my final port flush!

On my final day of chemo (14th Jan 2019) I wrote out a copy of this poem I'd written and I gave it to the chemo nurses. A few days later, one of the nurses called me and asked if I'd mind them publishing my poem in the hospital staff newsletter. I laughed and agreed. A few days passed and the nurse called again saying they wanted to add a photo and blurb of me in the newsletter 😆 so I popped down for a picture with the bell.

I'm still trying to get my hands on the newsletter, but I met another nurse today who told me she had loved the poem and that she had shown it to her friend (another staff member), who had recently been diagnosed with breast cancer, and that it had helped her feel much better. 💛

I have been asked to mentor for the Sunflower Warriors 🌻 support group and am applying to become a 'Big Sister' too. 🌼


Saturday, 9 March 2019

Radiated!! Lashes & Brows


Radiotherapy... the procedure

As I walk through the hospital, accompanied by either Tom, Dad, Mum (visited for 9 days) or Step Mom, we pass through the giant revolving glass walls, into the Cancer Care Centre, pass the volunteer dressed in a blue waistcoat, down the concrete steps surrounding colour-changing baubles... pausing at the reception desk to check in and find out which waiting room (A or B) we should head to.


My chauffer/loved one would head to the waiting room and find a seat whilst I hung my outer layers up & put my snowboots/shoes in the cupboard/locker. I'd hop into a changing room, swap my vest & t-shirt for a gown, (sometimes I'd put on blue booties) and join my fam in the waiting room.

 

One by one we'd be greeted and called to one of the 3 working machines (a 4th machine yet to be added), by a Radiotherapist and led through a corridor into a room made of lead and concrete (this sounds bad but the walls were pleasant colours, a picture on the ceiling etc.).

Two radiotherapists per session, I would plant my booty on the carbon fiber table and swing my legs round, my knees resting bent on a plastic hump (designed to keep my centre still I imagine).

Removing my arms from my gown, I would lay back, lifting my arms over my head and resting my upper arms in rests, my hands holding onto handles.


 

 

  

 💜


Pre-rads jitters

The morning of my first treatment (7th February), I searched online for the best way to treat my skin before and after receiving radiation. One site came up with '7 questions to ask your doctor before receiving radiation'. I was already fearful and on the fence about radiation; I had considered declining treatment more than once. However, many people, including my cousin who is a radiologist, reassured me that treatments are not prescribed lightly and that discussions, meetings etc. are held with doctors, nurses etc. I also heard from a university ex boyfriend, who collaborates the radiotherapy machines, who also assures me that it "works".


I did fire a few of the questions I had found at the Radiotherapist who had a pre-treatment meeting with my Dad and I, but as I lay, scared and unsure that I was doing the right thing, I was offered music and as the volume was turned up, the playlist was half way through a song that triggered all sorts of emotions for me.

Hotel California by The Eagles was one of my Dad's favourite songs.
It's also the song I crashed my car to. I had a friend sitting behind me, his surfboard resting across the passenger seat and backseat/parcel shelf; my body board & our wetsuit gear in the car somewhere. Crusing country lanes, the lady in the car in front of me appeared to drive round the corner, spot her son and his friend on their bikes on the right side of the road/layby and pulled over to the left, suddenly, without indication. I was driving my parents' SEAT Ibiza (which I believe needed new tyres) and shunted the lady further left than she'd intended; through a break in the hedge and into a field. I honestly don't remember what happened next... I assumed we exchanged details but all I remember is that Hotel California was still playing when  I got back into the driver's seat.

Change of focus

Anyway!! As I lay on the table in the empty room feeling cold, alone and very Hand Maid's Tale-ish, for the longest 3-4mins (all in my head; the therapists were all lovely), I fought back tears. Some of which escaped and tricked down my cheeks into my ears. Unable to move, I urged myself to lay still.

HG later reminded me that I would usually embrace this as an interesting experience and be fascinated by the treatments that science is allowing us to receive.
How Lucky I Am.

So from session #2 onwards; following an honest FB post and more overwhelming support, I approached radiation with a calm, focused, appreciative mind.

Sometimes I sang, sometimes I closed my eyes & breathed/dozed.
I often watched the machine/s doing their thang.

The process continued

The therapists would call out numbers (listed on 3 computer screens around the room) to each other and line the table up with the machine according to a laser/light ruler. The ruler between my boobs had to line up with my dot tattoo (of which I have 5) at 94.1 - other lasers shone from sides of the room (my neck is settled in a rest and I can only really look up) to line up with the tattoos on my sides.

Once they had gently moved me into position, sliding my torso with a sheet beneath me, whilst reminding me not to move/help them, they let me know they were leaving the room and headed back through the short corridor to a room (behind 2 walls for protection from any escaped radiation) with computers. From there, they move an arm out from the huge machine behind me and the flat metallic disk extends from behind me and makes an electronic prolonged buzz noise as my chest was x-rayed.

Next, the round head of the machine moved around and underneath me, lead needle fingers moving to change the shape of the radiation exposure behind the glass. The machine zapped me through my back (from/on an angle, not direct through my chest) and from various positions around me, then returned to the central position above me. The radiotherapists would return to the room and lower me down on the table, using a connected remote control. The final four treatments (of 20) were 'boosters' aimed from 2 angles at my tumor site.

I am told the next 2-4 weeks could be increasingly painful, as the site continues to burn from inside and fatigue may also increase. I'm planning to return to my nanny job in 3 weeks time.

In 2 weeks I begin taking daily hormone treatment pills, Tamoxifen and on 9th April I will be having my port removed.

My hair is as fuzzy and soft as a gosling; my eye lashes are returning, much to my excitement (I was down to 5 😜) and this morning I noticed my eye brows are starting to grow too.

I'm so excited, it feels like a fresh start!!


 

 

   

 






It's All About Timing

I just read my last post (Motivation: Life After B.C) and wanted to note that today I spoke to the mayor, who was behind me in the queue/line to pay for my panini today. I have met him a few times before - at an event at the fine dining restaurant I served at, and he also shook my hand, handed me a medal and had a photo taken with me after a charity 4km swim across Lake Couchiching in August 2017. Sun City Swim

I was actually signed up for, sponsored and very ready, training-wise, to swim the same charity swim in 2018, but I ended up having a lumpectomy (plus 3 lymph nodes), 2 days before the swim. Hmph. 😖😆

Anyway, I spoke to the mayor - Steve Clarke, briefly, about my hopes to offer the town parenting support, and asked him where he would suggest I begin in addressing organisations. He advised that behind me was the lady who worked for victim support (however in my panini-purchasing distraction, I didn't end up speaking to her). Mr Clarke went on to say that if I called his office next week, they would give me a list of contacts. I mentioned the Child Advocacy Centre (whom I have volunteered for in the past and for whom the Sun City Swim raises money) and Big Brothers, Big Sisters - whom I have recently decided to become a mentor through... I dashed away and opened another sneaky page and just completed the volunteer application page! 😃

I spoke briefly to the Mayor about my hair regrowth, following chemotherapy, and my journey. Another lady sitting nearby (it's a very cosy cafe 😋) mentioned my hair too and both she and the mayor touched it (this may sound strange, but I mentioned how it was ridiculously soft and how I was making everyone touch it). I likes to share the love! 🌈 They both mentioned my attitude.

I have had lotsssss of peoles telling me what an inspiration I am etc etc.

It's such a funny feeling to be told that. Yet it's kind of something I've always wanted to be... so it's pretty cool that I can be it, just by being me. I just don't feel mad about cancer. But I have been lucky. However, I don't mind dying (obviously doing what I can to prevent it happening any time soon), I would just feel bad for those affected by it.

I know I'm rambling. It's also funny to me, that I keep sitting down to write about my radiotherapy experience and I'm now two blogs down, finished 20 treatments yesterday (International Women's Day woohoo!) and haven't described it yet.

I'm excited and want to really kick myself up the arse this year to actually grab life by the bollocks.

Kthxbai xXx


Wednesday, 2 January 2019

Happy New Hair?

Wow time has passed.
My penultimate chemo (number seven) was 2 days ago - New Year's Eve/


HG woke me from my sofa slumber at 11:15pm to make sure I didn't miss the welcoming of 2019! 🎉

Overall, I've been very lucky during chemotherapy and haven't suffered too much. At the change of drug (treatments five to eight), I felt anxious. Not knowing how the effects of the Taxol would affect me was like being back at the beginning of chemo. I was worried that the 10 steriod pills (5 at 6pm & 5 at 10pm) the night before chemo would keep me up all night. I slept okay and the only major effects I experienced were swollen, sore hands for a couple of days - possibly from the overlap in chemo drugs, because I thankfully haven't had it happen again. Other side effects include neuropathy (tingly hands/feet), which I've been affected by minimally.
I have started having hot flushes at night though.Interesting & strange... I haven't had a period since the first few weeks of chemo and we've hardly had sex (whaaaah!).

I have been taking Grastofil, which is a brand name for Filagrastim. "Filgrastim belongs to the family of medications known as granulocyte colony stimulating factors (G-CSF). It helps the bone marrow produce white blood cells, which help the body fight infection." (Thanks, Google). So I initially injected my stomach (alternating sides) 11 times, starting 48hrs after my last chemo had ended. They live in the fridge so going out for a day/afternoon takes pre-planning! There is also an injection which can be taken once per chemo round, however this seems to be for those with "better" insurance than us, but also seems to cause more intense side effects - bone pain. 

My white blood cell count (WBC) was initially very high; beginning at 13.6 (4-11 is normal), after the second blood test showed my WBCs had reached 28.4, my oncologist reduced me to 8 jabs. I've mostly been taking 8 and this seemed ok for the first chemo treatments, but my levels rocketed (changed to 6 jabs) then have crashed down to 3.3 so I've been put back up to 8 jabs.

Neutrophils are the infection-fighting white blood cells, and a friend had mentioned keeping an eye on mine.
Last  Friday, mine were 1.3 - with the minimum they usually like being 1.5. I'm a really bad germophobe, but have been attempting to stay away from crowds, watching out for coughs & colds etc.

I spend a lot of my time at home these days; looking after myself! I've had lots of visitors, packages and messages of love.

I cannot believe there is only more more chemo treatment to go! I've become quite happy in my chemo hibernation cave!

Following the final treatment - number eight - I will have my usual 2 weeks 'recovery', jabs etc. then a couple more weeks until radiation treatment ('therapy') begins. This will be closer to my Dad's, so the plan is that I'll stay with him & my stepmum a few nights a week (this could help keep me healthier & munching less but we'll see!).

My stepmum is on the keto diet and my Dad is a pescatarian. A friend has mentioned the Blood Type Diet recently (anyone have any info?) and I'm also being nudged towards a naturopath (Tom is very anti), who will most likely want to sell me more appointments, expensive blood tests and numerous supplements. I recently asked a fellow breast cancer survivor friend, who said she was now a 'nutritarian'. I think mostly plant-based suits me/my body - as much as HG raves about animal protein being the best/quickest. I'm avoiding red meat as much as possible and chicken (I had unofficially given up turkey) unless it's hormone free/organic. I'm still eating fish here and there.

I think this is long enough! I'll add some pics! 😃



I've been editing my eyebrows to help emphasise them!


We are very lucky and received some cool gifts & vouchers for Crimbo!


Day before chemo #7
Bass lake Provincial Park




Testing hats in the Oncology waiting room!


Testing all the vital signs... 31/12/18



Crussssshing it!


New Years Day 2019 - Laughlin Falls



Bass Lake 1st Jan 2019



Playful Puss!


Kitty love this morning! 2nd Jan

HAPPY NEW YEAR!

Wednesday, 3 October 2018

Chemo? Sweet...

I checked out the chemo suite today... it's two rooms, adjoining and there's a calm atmosphere. It's at the top of the hospital which gives a lovely view of roofs & trees. 🌲

I was there to have my portacath re-dressed. It was implanted (under my skin on left side, below collar bone) on 25th September; 8 days ago under local anesthetic and I was excited(?) to get to see it! All healing well, chemo will commence in 6 days time!

A portacath is a round device with a valve, attached to a line/catheter that is threaded into a vein and goes down into the heart. It can be used to give IV fluids, blood transfusions, chemotherapy & other drugs; it can also be used to take blood. It can stay in as long as is needed (must be used or flushed monthly).

I met the 3 Oncology Nurses and they happily answered my questions. Every single one of the workers - Volunteers, Nurses, Doctors etc etc. have been totally lovely actually. 💖

I learnt that I am currently "Chemo Niave", or as I like to say, a Chemo Virgin 😜, as my blood is still pure (lol) and hasn't yet been affected by chemotherapy (or as I like to call it, poison).

So here's my port after insertion and today... 



  

At the weekend, I joined a 5km walk called Race for the Cure; raising awareness & money for breast cancer etc. I knew I'd be with HG, Dad & his lady but wasn't aware 3 of their friends would be joining and then, once walking, was handed a phone to speak to Dad's Lady's son, daughter & their partners & pup - who were also walking in their town, Winnipeg!! Wowzer. Such love & support!

Here is my crew, warming up!!


  



Here is my boi & me on a delicious rainy walk. 💚
  

 

I'm feeling good - as good as I can be, with chemo approaching.

I was invited for a run this evening... I do feel like I need to do something before Tuesday, but don't want to disrupt the port either. I plan to get outside before every chemo treatment and be as active as I can during. Fingers crossed! ✌👍👌

Take care peeps xx

PS I couldn't wash my hair after the port op so I eventually went to the hairdresser... whilst there, I she gave me an undercut & snipped off 4 inches! :)

I've attended a Chemo Class and also a Look Good, Feel Better workshop.
So lucky!